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Not Fade Away: A Memoir of Senses Lost and Found
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Thirty-four-year-old Rebecca Alexander is a psychotherapist, a spin instructor, a volunteer, and an athlete. She is also almost completely blind, with significantly deteriorated hearing. Not Fade Away is a deeply moving exploration of the obstacles we all face-physical, psychological, and philosophical. Rebecca's story is an exquisite reminder to live each day to its fullest. In Not Fade Away, Rebecca charts her journey from a teenager who tried to hide her disabilities to a woman who is able to face the world exactly as she is. Even though Rebecca inhabits a gradually darkening world, she refuses to let that stop her from living life with joy and enthusiasm.
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Audible Audiobook
Listening Length: 7 hours and 56 minutes
Program Type: Audiobook
Version: Unabridged
Publisher: Tantor Audio
Audible.com Release Date: September 11, 2014
Whispersync for Voice: Ready
Language: English, English
ASIN: B00NHCONQA
Amazon Best Sellers Rank:
Having the privilege of knowing author Rebecca, I could write for hours about her perseverance, how inspiring and strong she is and how to me she is essentially a superhero. But none of these things, (as related to her disabilities) define who she is for even a minute, nor do they define this book.What starts as a truly unique couldn't write this sh*t if you tried kind of story, quickly reveals itself to be full of humor, humanity and the universal truths and questions we all face. I felt as if I was sitting across from Rebecca being happily bombarded by her contagious humor and zest for life. Her personality, honesty and relatable experiences jump off each page, prompting the reader to consider not only their own blessings and challenges, but the larger questions about being the best friends, sisters/brothers, lovers and people we can be.We all stand to learn so much from those like Rebecca who are brave enough not only to live life SO large but also to share each moment so honestly with the world. Every anecdote in this book is a reminder of how adaptable, resilient and downright loving we can all choose to be when given the choice. Not a light read to be sure, but as only Rebecca can, this book takes the scariest and loneliest aspects of our lives and creates space for laughter, love and hope. A GREAT read.
I can relate to Rebecca’s dread of getting her vision tests, knowing already what they will say: “your vision has gotten worse again.†From about the age of 5 to 35, I dreaded the eye doctor because I always got the same news: “your vision has gotten worse again, here are thicker glasses and stronger, less bearable, contact lenses for you to endure. Have a nice day!†Even though they never told me I was going blind, I certainly seemed to be in the express lane for it. Because of that, I have always been fascinated by other people’s stories of vision loss or of blind people, I guess because someday I figured I could very well be among them, at the rate I was going.I read this book expecting a story of what it would be like to find out you are going blind and deaf, but what I got was so much more. What I found was not really a story of coping with disabilities, but more a story of living life to the fullest, regardless of your circumstances. Rebecca is funny, intelligent, compassionate, and extremely athletic; accomplishing things already that most fully able-bodied people never even come close to achieving in their lives. I have no doubt, given her strong network of family and friends, and her amazing perspective and perseverance, that she will continue to thrive, no matter what path her eyes and ears decide to go down.Truly a remarkable woman and I thank her for this uplifting read and wish her the very best, if she ever reads this! Highly recommended!
Rebecca Alexander's "Not Fade Away" is a journey that's filled with a full range of emotions from sad and shocking to funny and hopeful. At 19, she received the news that she had Usher Syndrome Type III. It's a rare genetic mutation with profound consequences--loss of sight and sound. But, even at 12, when an ophthalmologist told her parents she would need a guide dog by 20, Rebecca never simply gave in to the diagnosis at hand. Along the journey, we see the familiar life of many teenagers including possibly ourselves. From her parents' divorce to her first romance to moving far away for college, so many events in this young life ring true. And she manages to give us a valuable insight into a world that so few of us understand. As a child, I recall a bizarre conversation that seems more common now than I realized. I was asked if I had to lose one thing, sight or sound, which would it be? Rebecca never had the choice. Yet, she takes the most out of life she can and truly practices the concept of Carpe diem-Seize the day!Above all, Rebecca Alexander's book left me feeling more humble than I could imagine. But, it also left me with such a wonderful feeling of hope. It's a wonderful book to read and share. Of all the books I have read over this past year, Not Fade Away ranks at the top!
Great read, heartwarming and inspirational. Rebecca draws you into her life, her friends, her family and by the time you're done, you feel like you are part of her big, warm, supportive network. I was a little apprehensive starting the book, preparing to read about some very difficult challenges for this young vibrant woman, but instead, I walked away awed and inspired by how Rebecca turns thoughts of pity to admiration for how she has chosen to live life to it's fullest, choosing to celebrate everything she does have rather than what she has lost!
This autobiography is about a truly an unbelievable courageous young woman informing us from her first diagnosis of a genetic disease which will probably result in another Helen Keller! Even though she learns of her disease at a early age, she is going through life, as we speak, continuing to live as a "healthy' professional. I could not put the book down to learn of what was going to transpire next in her life.
Reading Rebecca Alexander's memoir is like listening to a good friend confide what it is like to gradually lose sight and hearing. As she goes through the progression of how her syndrome effects her body and her life, she lets you in on the ups and downs of her journey without pretense. Rebecca's voice is honest, courageous, funny and inspiring. I loved her descriptions of the many physical challenges she decides to take on and how she is able to harness enduring strength, even as other parts of her body are becoming weaker. A joy to read.
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